Transform. Empower. THRIVE.
WHO
The HEM (Health Equity Matters) Foundation, Inc. is a 501(c)(3) nonprofit advocacy organization serving individuals impacted by sickle cell disease & marginalized individuals with rare hematologic conditions, such as paroxysmal nocturnal hemoglobinuria (PNH).
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Individuals from marginalized communities are at higher risk for poorer health outcomes, not because of genetics, rather from systemic inequities and limited access to quality care. Recognizing these challenges, we have expanded our mission to serve not only those with SCD but also individuals with rare hematologic conditions who face similar barriers.
The HEM Foundation, Inc.'s mission is to empower people affected by these conditions to maximize quality of life and bridge health and racial disparities.
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Our vision is to create a future where health equity is a reality for all, enabling individuals with sickle cell and other conditions to THRIVE physically, mentally, and emotionally.
WHAT
The initial programs the HEM Foundation, Inc. focus on educational opportunities addressing mental health to equip individuals with tools to manage their mental well-being since mental health can negatively impact physical health.
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We will offer advancing education and career development through scholarships and financial assistance for higher education and training programs.
WHY
Sickle cell disease is the greatest health and racial disparity seen in modern medicine. Individuals from marginalized communities face even greater health risks due to systemic racism and inequities that have shaped healthcare in the United States.
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Health disparities stem from a variety of factors, including poverty, limited access to healthcare, and individual health behaviors. These disparities are also influenced by social determinants of health, such as living and working environments, upbringing, and access to resources and support systems.
We recognized the interplay of mental health and physical health, and have dedicated resources and programs that address both. By prioritizing mental health awareness and education, we aim to empower individuals with the tools needed to navigate the complexities of living with chronic illness, especially given the state of our country.
Inequities in education further widen the gap in health outcomes. Research shows that lower levels of education are linked to worse health. This is why the HEM Foundation, Inc. places a strong focus on education as a key strategy to promote health equity. By implementing programs centered around education and offering scholarships, we strive to reduce these disparities and support informed health decisions.
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Together we can create meaningful change. By advancing health equity through mental health support, education, and holistic care, we move closer to a more just and equitable future for all!
Maya Bloomberg is a board-certified Family Nurse Practitioner earning both her Bachelor’s and Master’s of Science in Nursing degrees from University of Miami. She has worked as a Classical Hematology Nurse Practitioner since 2014, specializing in sickle cell disease and congenital bleeding disorders, which shed light on the significant health and racial disparities that exist in modern medicine.
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Recognizing the need for a reliable source of information and support for individuals affected by sickle cell disease, she created the popular social media page @theHemeNP, which serves as a trustworthy hub for sickle cell and chronic illness support. In addition to her clinical work and social media presence, Maya serves as a board member of the SCDAA Miami-Dade chapter and is a co-host of the “Let’s Talk About Sickle Cell” podcast.
Driven by her passion to make a meaningful difference and bridge the existing disparities, she sought to expand her impact. This led to the establishment of the HEM Foundation, Inc., which strives to create positive change & improve the lives of those affected by SCD.